Thursday, March 8, 2012

Setbacks

I have been sick for about a week. Things got worse on Saturday and by Sunday I was really feeling poorly. I began running a low grade fever. Then it hit me! I have an internist (primary care physician), a cardiologist locally, a lung doctor locally, a cardiologist in Philly and my PH specialist in Philly. Which one should I call? I opted to call the PH specialist in Philly. As luck would have it he was out of town but his very capable nurse practitioner took care of me. She told me I sounded like I was anxious on the phone. I wasn't, it was that I was short of breath. I had weighed myself and over the past few days I was taking on fluid. This has been an ongoing battle for me and I was surprised to learn that many other people with PH or PAH do not have this problem. By the way, I do actually have PAH which means that the right side of my heart is failing. I called my lung doctor and saw someone in the group that afternoon. He was quite alarmed that my oxygen level was so low. The last time I was in Philly I was told just to use the oxygen at night, for my sleep apnea (oxygen gets bled into the machine.) The pulmonologist told me that right now I should be on the oxygen 24/7. I knew he was right when I saw that sitting there my oxygen was under 90. He said he thinks I have bronchitis but couldn't be sure I didn't have a pneumonia developing. He gave me the antibiotics I take for pneumonia and had me get a chest x ray. I came home and have been vegging ever since. I have chills a lot and still only a low grade fever but even with the oxygen I have having some lightheaded moments. Hoping I wake up feeling a lot better this morning. It's been about ten days since I have been out other than to go to the doctor and get the xray. I'm feeling housebound. Yet I am too sick to go anywhere. Hopefully the Avelox will kick in soon.

2 comments:

  1. I sure hope you feel better soon, Nelle! It's no fun being sick, but especially when dealing with PH!

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  2. This setback doesn't sound good. I hope the extra oxygen and antibiotic kick in to help. I hope you will be feeling better when it does. HANG IN THERE. Get plenty of rest. The world can wait. You'll be out and about when things improve. Meanwhile sit tight and read, watch TV and take care.

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