Friday, October 25, 2013

A Glitch in the Road

I haven't been feeling all that great for awhile now. Thing is, why? I have so many issues that it's hard to pinpoint one. I have been anemic for over a year. I take iron pills on and off and then when it gets up, I get lazy about it and then slowly begin another decline. I thought that's why I wasn't feeling so good. On Oct. 10th I had a right heart catherization. Ugh. This was the first one I had in my neck. Previously they were done through the groin. Because I am on Coumadin (blood thinner) I was quite nervous about it. Honestly, it was much easier. I didn't even have an issue with the neck bleeding. The results of that were not so good though. MY Ph pressure had actually increased. I was already in the severe category. It went up another ten or so points. Not good. My wedge pressure also went up. The fluid I carry in my body is hurting my heart as well as the lung pressure. My right sided heart failure was known but now the left seems to be showing signs of it too. It's really hard to receive my PH treatment in Philadelphia and then have to do everything else with my cardiologist and lung specialist in New Jersey. It's time consuming, often I am trying not to be repeating tests all the time and getting copies of this one sent to that one. As though that were not enough to deal with, my husband's employer is changing health insurance companies. All my doctors took BC/BS but now they are switching over to United Healthcare. Neither my cardiologist or lung doctor take it. Yes, I can get a plan with out of network bens but if I do I am looking at many thousands of dollars out of pocket again. Things like this feel overwhelming when you don't feel good to begin with. I have started going to church again. I found a great church and that is helping me. I still love life, despite the struggles. I love knowing that when my body has had enough and this life ends, I will go to a much better place where there is no more suffering. Thank you Lord for that promise.